


| Our Family in the Spotlight - The Leverette Family Adopted by Nurenberg Paris for the Christmas Holiday 2009 Brian, Laurie, Jacquis, Raven, London and Ocean Leverette. They live in Bedford in a small, but nicely maintained and decorated bungalow. Brian, the dad, is a graphic designer and photographer. Laurie is now a stay at home mom caring for her daughter, Raven, supporting her as she adjusts to life as a visually impaired twelve year old girl, as well as caring for her newborn daughter, Ocean. At the holiday time, the youngest child, Ocean was only 3 weeks old and it reminds me on how fragile life is and how quickly life can change. Raven, who is 12 had just started having severe headaches this past year, which they initially suspected were migraine headaches and complained about blurry vision from time to time. Her mother scheduled an appointment with an opthamologist. Two weeks later they were admitted directly from the opthamologist’s office to Rainbow Babies & Children. By the end of that very long day, they were told that Raven would have to have major surgery to remove a rapidly growing brain tumor that was causing pressure on Raven’s optic nerve. She would have multiple surgeries over the next few months. There were complications, consultations with physicians and the Cleveland Sight Center , occupational and physical therapy appointments and major adjustments in their lives. In March, Laurie went to her own doctor thinking the stress of all their family was going through had caused her to miss her cycle only to discover she was pregnant! Stress and a few missed pills. . . . but now they have a beautiful baby girl who has brought joy to this family who has been on a very complicated stressful medical journey that is not yet over. The day Laurie and Brian brought Ocean home from the hospital three weeks ago they had to turn around and take Raven to the emergency room at Rainbow, as Raven still struggles with fluid that fills the space where the tumor had grown. Laurie had no choice but to take Ocean with her to the ER, as she was nursing. Laurie told us that when they found out Raven had to be readmitted that evening, Brian decided he would reluctantly go home to care for their younger son, London . He hated to leave his girls, but his son also needed him. Raven started crying about having to be readmitted, then Laurie started crying because her daughter was upset, she herself had just gotten home from the hospital and was tired and emotional. Ocean, just three days old started crying as the three sat in the hospital room hugging, tears streaming down their faces. Raven’s family includes an older brother, Jacquis, who is 17 years old. He has applied to multiple colleges hoping to pursue a degree in graphic design or marketing. He also plays ten different instruments, including saxophone, clarinet, French horn, guitar, key board and has been involved in band programs since he was in fifth grade, and now in the Wind Ensemble at Bedford High School . He hasn’t ruled out a career in music. Laurie recalls going into Jacquis room recently to find him at his computer filling out an online college application with one hand, as he held his new baby sister sleeping in his other arm. It suddenly occurred to her that both of these children were hers! This was not what she had originally intended, but a vision and family none the less that she feels was meant to be and that she loves deeply. London , a seven year old, extremely creative, little boy who loves his family. He is always excited to share his stories of their Make-A-Wish trip to Walt Disney World in July. The entire family will never forget their trip, how special it made them feel and how wonderful it was to forget about the doctors and future that is ahead of them. They could all just be kids and enjoy every precious day. It was yet another story about how special Make-A-Wish is to these families. Raven looks like a normal, pretty twelve year old little girl, but she is now legally blind. She only has vision within three feet, but that is very blurry. Everything has to be magnified with an electronic magnifier 48 times. She is learning Braille, but not having her sight has been a frustrating and scary experience. Her friends and teachers don’t understand her limitations. The fact that she looks normal makes it even harder because people forget she can’t see. Her family is extremely supportive, but I sense she feels depressed and angry at times because she misses reading novels and enjoying the same preteen life experiences her friends are. This is only 1 of our many families that are special to the Ashley's Hope family and it takes all of our supporters to continue to assist them and help their dreams come true. |
